October 23, 2011

Yesterday Phil woke up feeling "AMAZING" so we did the normal morning thing, showering and getting ready and such. The only really odd thing I can think of is that he was watching Ava while I was getting ready. He held her (all 22 lbs of Ava) for about 10 minutes and his muscles began to shake because his muscles are becoming fatigued. After we got ready, we drove around for a bit and ended up taking a trip to Target. We walked around for a bit, killing time. Then Phil started to sweat profusely, and then he turned white. He was super hot and then super cold. We rushed out of the store and into the car and headed home.
While he didn't let that drag him down, he puttered around the house, pushed through it and ended up playing with his RC cars for a bit.

Today was a "bad" day. He woke up in pain, with abdominal cramping, his legs are also getting fatigue (maybe from laying down so much?) and cramped. Actually the cramps in his legs are pretty bad I guess. Like Charley Horse's. We ended up rescheduling for my mom's birthday lunch (more of a remembrance lunch I guess), which ended up being a good thing because Phil is pretty sedentary today.
We did make it out of the house to go to Costco. While we were walking around, I noticed Phil's head bobbing around. I asked him why his head was shaking (like a twitch?) he said he didn't know what I was talking about. I observed him through out the store. The longer were were standing the worse the twitch/bobbing, got. As we were exiting the store, I noticed he was pale and white again.
When we got to the car, he was sweating profusely in addition to the head twitch.
We are taking it easy the rest of the day (which isn't hard because Ava takes her 3 hour nap in the afternoon).

Kind of concerning that there are new issues in addition to the old issues, and that the Clix Plexus doesn't really seem to be helping all that much at this point. Phil seems to think that it has dulled the pain, but he still gets cramps and pain in his abdomen.

PS
So the head bobbing may be a reaction to a sudden stop in medication (recommended by his doctor) or maybe an addition of medication added to his long list of medication. We are hoping in about three days it will stop.
I also want to mention. Most days we are hopeful. We try and keep our head above water. We try and think positive and enjoy the time that we spend together. We hang out most days. While the business is slow, mostly due to my not learning how to actually run the machine, and Phil being stuck either on the couch or in bed.
We make the most of our days. We enjoy each others company.

The purpose of these blogs are to help remind myself of the progress (or lack there of) in Phil's health, also to keep others updated periodically because we seem to be couped up in our own little world. When Phil feels better he wants to get out more and hang out with people again. But since he isn't feeling well, he keeps to himself.
I'll keep updating and once in a while posting the important updates on facebook. Thanks for following and thank you again so much for your prayers and concern. We appreciate it.